The views expressed in our content reflect individual perspectives and do not represent the official views of the Baha'i Faith.

Woman in PainNineteen years ago today, I woke up with a sore throat. I ignored it, as I usually did with pain or illness. I was 26 years old, and according to a performance review, a “superstar” at my law firm. I don’t remember if I went to the gym that morning as was my habit, but I got ready for work and walked to the office.

Four hours later, I had a high fever and could barely stand.

My life changed irrevocably that day, although it took me many months to begin to comprehend that. I had to give up my career. Then I gave up walking long distances. Then I gave up my apartment in the city. Then I gave up driving. You get the picture, I’m sure. Usually on this sick-aversary, I would reflect upon the length of time that has passed. In fact, last year I told the CFS Advisory Committee, “This Saturday is the 18th anniversary of the day I got sick. If I had given birth on October 6, 1994, that child would now be an adult.”

But this year, what weighs upon me is not the passing of nineteen years. It is the burden of this nineteenth year of my illness itself which occupies my thoughts. This year has tested me physically, emotionally, and spiritually. I feel my heart becoming more and more burdened by the suffering of those around me, and by my own suffering too. I have drawn upon reserves of strength that already feel tapped out. My spirit is gasping for breath and longing for just a little bit of rest.

19Although a nineteen-year illness generates enormous tests, the number nineteen has a positive significance in my religion. The central tenet of the Baha’i Faith is Unity, especially the unity of humanity. The Baha’i Faith draws upon many concepts from Islamic culture (although it is a separate religion). In the Arabic Abjad numeric system, letters correspond to numbers and so each word has a corresponding numeric value. The word vahid means Unity, and the numeric value of vahid is 19.

Baha’is believe that unity, as a spiritual concept, is not just needed between groups of people, but within families and within oneself. To achieve unity, we need clarity, patience, communication, understanding, and justice. I am struggling to bring those qualities front and center in myself right now because all the trials and difficulties of this nineteenth year have left me in a daze.

I looked a long time for a prayer that I could say today, one that would express my need for strength as well as my belief that there is hope in this life – even after nineteen years of illness, even after a year that has stretched me past my limits. This is deeply personal, but I would like to share that prayer with you today. And if you feel moved to do so, I would be grateful if you could offer up a prayer or good thought for me, too – and for everyone else struggling with the terrible test of long-term illness.

O God, my God!  Be Thou not far from me, for tribulation upon tribulation hath gathered about me.  O God, my God!  Leave me not to myself, for the extreme of adversity hath come upon me.  Out of the pure milk, drawn from the breasts of Thy loving-kindness, give me to drink, for my thirst hath utterly consumed me.  Beneath the shadow of the wings of Thy mercy shelter me, for all mine adversaries with one consent have fallen upon me.  Keep me near to the throne of Thy majesty, face to face with the revelation of the signs of Thy glory, for wretchedness hath grievously touched me.  With the fruits of the Tree of Thine Eternity nourish me, for uttermost weakness hath overtaken me.  From the cups of joy, proffered by the hands of Thy tender mercies, feed me, for manifold sorrows have laid mighty hold upon me. With the broidered robe of Thine omnipotent sovereignty attire me, for poverty hath altogether despoiled me.  Lulled by the cooing of the Dove of Thine Eternity, suffer me to sleep, for woes at their blackest have befallen me.  Before the throne of Thy oneness, amid the blaze of the beauty of Thy countenance, cause me to abide, for fear and trembling have violently crushed me. Beneath the ocean of Thy forgiveness, faced with the restlessness of the leviathan of glory, immerse me, for my sins have utterly doomed me. – Baha’u’llah, Prayers and Meditations, p. 243.

5 Comments

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  • Nava Sarracino
    Jan 21, 2018
    Prayer has been said. Thank you for sharing your sorrows and struggles. My partner had suffered from CFS for 17 years the last 7 being completely bed bound. At the end of 2016 something shifted in a huge way and he is now within a year serving on the LSA and ITC, slowly walking again, eating normal food, seeing friends.... The quote that was one of my mantra's through it all was "Ask whatsoever thou wishest of him alone......with a look He granteth a hundred thousand hopes...He doeth as He doeth and what recourse have we" may you find solace ...and feel love surround you
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  • David Gould
    Nov 14, 2013
    Jennie, eloquent and appreciated. I will certainly augment your drawing down the assistance of God. Warm regards, David Gould
    • knittah
      Nov 14, 2013
      Allah'u'Abha, dear David! How wonderful to see you here. Thank you so much for your prayers.
  • Nancy Lee
    Nov 14, 2013
    Hello Jennie! Thankyou for this article. It is difficult to describe your experience with a chronic disease like yours. I know a bit about it, having an undiagnosed autoimmune disease most of my life, but full-blown since 1997. I was finally diagnosed in 2011. I will recite this prayer for you and hope that you will find your tests are eased. Allah'u'Abha!
    Nancy
    • knittah
      Nov 14, 2013
      Thank you so much, and Allah'u'Abha Nancy! I will remember you in my prayers today.